So
I went to see my doc at NY Eye and Ear this afternoon and did not receive news I was hoping for - though the foggy vision and extreme knee pain was already my indicator of what kind of news I would get.
My current medication routine is not working. So Dr Samson has placed me back on Prednisone - 20mg indefinitely on top of my 2g daily Cellcept. My joints have been extremely inflamed so I will see a Rheumatologist this Friday to start treatment from that end of the disease.
Yes, I am angry. Fucking pissed off. But....I know how this kind of anger brings issues with this disease. So I force myself to stop feeling sorry for myself and just fucking deal. I learned the hard way last year how un-managed stress and anger can aggravate my symptoms in a truly viscous way.
I'm still fighting hard. That wont stop. I know that there is a valid and solid reason not yet seen why I am experiencing all these symptom and issues. Perhaps my ultimate calling will be to become an advocate for those who suffer or struggle with living "normal" and active lives....
Regardless of what happens, I have always trusted in God and his ultimate plan for my life.
'Everything is always OK in the end. If it's not OK, then it's not the end.'
I'm open to all possibilities and opportunities. But those opportunities will not be there if I give up.
One day this struggle will be a memory. One day soon.
I went to see my doc at NY Eye and Ear this afternoon and did not receive news I was hoping for - though the foggy vision and extreme knee pain was already my indicator of what kind of news I would get.
My current medication routine is not working. So Dr Samson has placed me back on Prednisone - 20mg indefinitely on top of my 2g daily Cellcept. My joints have been extremely inflamed so I will see a Rheumatologist this Friday to start treatment from that end of the disease.
Yes, I am angry. Fucking pissed off. But....I know how this kind of anger brings issues with this disease. So I force myself to stop feeling sorry for myself and just fucking deal. I learned the hard way last year how un-managed stress and anger can aggravate my symptoms in a truly viscous way.
I'm still fighting hard. That wont stop. I know that there is a valid and solid reason not yet seen why I am experiencing all these symptom and issues. Perhaps my ultimate calling will be to become an advocate for those who suffer or struggle with living "normal" and active lives....
Regardless of what happens, I have always trusted in God and his ultimate plan for my life.
'Everything is always OK in the end. If it's not OK, then it's not the end.'
I'm open to all possibilities and opportunities. But those opportunities will not be there if I give up.
One day this struggle will be a memory. One day soon.